I get “A Quote of the Day” from the website “All About Gratitude” (http://www.AllAboutGratitude.com ) and love it. Gratitude is a recurring theme in my own writing and I believe that when it comes to being happy, it makes all the difference in the world. I also believe that many, if not most people, don’t know what to be grateful for.
Paul Taubman of “All About Gratitude” found this on the internet. I thought it was worth sharing. Enjoy!
I am Thankful:
For The Mess To Clean After A Party Because It Means I Have Been Surrounded By Friends.
For The Clothes That Fit A Little Too Snug Because It Means I Have Enough To Eat.
For My Shadow That Watches Me Work Because It Means I Am Out In The Sunshine
For A Lawn That Needs Mowing, Windows That Need Cleaning, And Gutters That Need Fixing Because It Means I Have A Home.
For The Teenager Who Is Complaining About Doing Dishes Because It Means She Is At Home, Not On The Streets.
For The Taxes I Pay Because It Means I Am Employed.
For All The Complaining I Hear About The Government Because It Means We Have Freedom Of Speech.
For The Parking Spot I Find At The Far End Of The Parking Lot Because It Means I Am Capable Of Walking And I Have Been Blessed With Transportation.
For My Huge Heating Bill Because It Means I Am Warm.
For The Lady Behind Me In Church Who Sings Off Key Because It Means I Can Hear.
For The Pile Of Laundry And Ironing Because It Means I Have Clothes To Wear.
For Weariness And Aching Muscles At The End Of The Day Because It Means I Have Been Capable Of Working Hard.
For The Alarm That Goes Off In The Early Morning Hours Because It Means I Am Alive.
And Finally, For Too Much E-Mail Because It Means I Have Friends Who Are Thinking Of Me.
- As seen on the internet
Participate. Make a difference. Live a life that matters.
Tuesday, March 23, 2010
Monday, March 8, 2010
What will you do?
The National MS Society has declared March 8-14 “National MS Awareness Week” and the MS Foundation calls March the “National MS Education and Awareness Month”. With that said, the question is “what will you do?”
Over the past few years we have become increasingly involved with the National MS Society. What I have learned from that involvement is that most everybody wants to help. They just don’t know what to do. Below are a few suggestions and I hope they will help you.
Join one of 600 MS Walks taking place from coast to coast
Better yet, join our team, the JiggyWiggits on April 18th at the Greater LA Walk around the Rose Bowl in Pasadena. The Walk is a great way to spend the day and participate in raising money to find a cure.
Click here to Join or Donate or Find A Walk Near You
Become an MS Activist
This is easy to do, free and makes a huge difference. The more voices we have, the more we are heard. The more we are heard, the better the research funding, legislation, services and more for people living with MS.
Be an MS activist.
Be a volunteer
Volunteers are needed and make it all happen. They assist with all the big events (The Walk, the Bike Ride and Challenge Walk) and with individual support and activities (Peer counseling, financial aid, referrals and resources).
Click here to Volunteer
Learn something new and share it
There is so much to know and so much information available that it is impossible for any one person to stay on top of it all. Fortunately, the National MS Society does a pretty good job of that. But having the info on their website is not enough. It needs to be read and shared with others. Learn something new about research and treatments and share it with someone you know.
Learn Something New About MS Research and Treatment
Join an MS Support Group
If you live with or are caring for someone with MS, then there is probably a Community Support Group near you. These groups provide a forum for the exchange of information and ideas on living better with MS. Join the community. No one has to go through this alone.
Support Groups In Southern California
Find a Chapter of the MS Society near you.
Host your own fundraiser
Carwashes, bake sales and lemonade stands. There are a million ways to help raise money for research and treatment of MS. All you need to get started is to click here:
Host your own fundraiser
Ask somebody to donate to the cause
For many people, fundraising is a four letter word. But after years of experience, I know how to make it easy. Ask the people that you give money to for help. Ask your doctor, lawyer or accountant to donate. Ask your insurance agent, electrician or plumber to help. And, if you ask everyone that you give money to for a donation, they will do it. It is a very simple concept. “You wash my back and I will wash yours.” But if you don’t ask, you don’t get. So do it today. Send them to our link. You’ll feel good and they will too.
Click here to Join or Donate
The first step is to increase awareness. With increased awareness comes increased funding. With increased funding comes a cure. We can all be a part of the cure for MS. The only question is “What will you do?”
Participate. Make a difference. Live a life that matters.
Over the past few years we have become increasingly involved with the National MS Society. What I have learned from that involvement is that most everybody wants to help. They just don’t know what to do. Below are a few suggestions and I hope they will help you.
Join one of 600 MS Walks taking place from coast to coast
Better yet, join our team, the JiggyWiggits on April 18th at the Greater LA Walk around the Rose Bowl in Pasadena. The Walk is a great way to spend the day and participate in raising money to find a cure.
Click here to Join or Donate or Find A Walk Near You
Become an MS Activist
This is easy to do, free and makes a huge difference. The more voices we have, the more we are heard. The more we are heard, the better the research funding, legislation, services and more for people living with MS.
Be an MS activist.
Be a volunteer
Volunteers are needed and make it all happen. They assist with all the big events (The Walk, the Bike Ride and Challenge Walk) and with individual support and activities (Peer counseling, financial aid, referrals and resources).
Click here to Volunteer
Learn something new and share it
There is so much to know and so much information available that it is impossible for any one person to stay on top of it all. Fortunately, the National MS Society does a pretty good job of that. But having the info on their website is not enough. It needs to be read and shared with others. Learn something new about research and treatments and share it with someone you know.
Learn Something New About MS Research and Treatment
Join an MS Support Group
If you live with or are caring for someone with MS, then there is probably a Community Support Group near you. These groups provide a forum for the exchange of information and ideas on living better with MS. Join the community. No one has to go through this alone.
Support Groups In Southern California
Find a Chapter of the MS Society near you.
Host your own fundraiser
Carwashes, bake sales and lemonade stands. There are a million ways to help raise money for research and treatment of MS. All you need to get started is to click here:
Host your own fundraiser
Ask somebody to donate to the cause
For many people, fundraising is a four letter word. But after years of experience, I know how to make it easy. Ask the people that you give money to for help. Ask your doctor, lawyer or accountant to donate. Ask your insurance agent, electrician or plumber to help. And, if you ask everyone that you give money to for a donation, they will do it. It is a very simple concept. “You wash my back and I will wash yours.” But if you don’t ask, you don’t get. So do it today. Send them to our link. You’ll feel good and they will too.
Click here to Join or Donate
The first step is to increase awareness. With increased awareness comes increased funding. With increased funding comes a cure. We can all be a part of the cure for MS. The only question is “What will you do?”
Participate. Make a difference. Live a life that matters.
Wednesday, March 3, 2010
A Pill That Is Not Hard To Swallow
This entry is specifically for people with MS.
Today I was contacted by a representative from Acorda Therapeutics to talk about AMPYRA, the newest drug to be approved by the FDA specifically for people with Multiple Sclerosis. The drug is designed to improve walking speed and ability. They want to get the word out to our community and have contacted several bloggers to help them do that. That’s where I come in.
I am also uniquely qualified to talk about this drug because its main ingredient is 4-aminopyrodine (4-AP for those in the know), which I have been taking for the past several years. The good news about 4-AP is that it works. The bad news is that it is not an FDA approved drug, is only available through compound pharmacies and insurance companies won’t pay for it. Now all of that is changing.
To varying degrees, many of us with MS have difficulty walking. In clinical trials AMPYRA helped improve walking speeds by as much as 25%. Having taken 4-AP, the main ingredient in AMPYRA, I can tell you that I walk better and feel stronger when I take it and that is a good thing. Keep in mind that AMPYRA is not a substitute for one of the disease modifying drugs and will not impact the course of an person’s MS. But it will improve walking ability for many who take it.
Were there side effects? Yes, there is a risk of seizures and we knew that when I started on the drug. At first I took 10 mg a day. No problem. Then 20 mg a day and then 30 mg a day. No problem. Then I took 40 mg and BAM! I had a seizure that night. I dropped back down to 20 mg. a day and haven’t had a problem since.
The recommended dosage is 10 mg. twice a day. There is no evidence of incremental benefit with increased dosage, so don’t take more or you might have a seizure! Also, do not take AMPYRA if you have kidney or renal problems.
Here is what they won’t tell you…..4-AP is a leading brand of bird poison. It causes seizures in birds and that is what keeps them away. Who figured out that it might be good for people? I love modern medicine.
Acorda Therapeutics, the company that is marketing AMPYRA, is making the product very affordable for almost everyone. Like many drug companies, they have a program for the uninsured and under-insured who qualify, to receive the medicine at no cost. For those of us with insurance, the company has agreed to limit our co-pays where allowed (Sorry Massachusetts residents) to $40.00 per month. This is much less than what I pay the compounding pharmacy each month and that’s a good thing.
To learn more go to:
http://www.ampyra.com/consumer
http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm198463.htm
Or watch a video from the National MS Society at:
http://www.youtube.com/watch?v=8E7DUwkAQv4
Walk better. Then sign up to do one of the more than 600 MS Walks taking place from coast to coast. Bring a friend or join us. You, and your friend, will be glad you did.
Join Us At National MS Society - Walk Event:
Participate. Make a difference. Live a life that matters.
Today I was contacted by a representative from Acorda Therapeutics to talk about AMPYRA, the newest drug to be approved by the FDA specifically for people with Multiple Sclerosis. The drug is designed to improve walking speed and ability. They want to get the word out to our community and have contacted several bloggers to help them do that. That’s where I come in.
I am also uniquely qualified to talk about this drug because its main ingredient is 4-aminopyrodine (4-AP for those in the know), which I have been taking for the past several years. The good news about 4-AP is that it works. The bad news is that it is not an FDA approved drug, is only available through compound pharmacies and insurance companies won’t pay for it. Now all of that is changing.
To varying degrees, many of us with MS have difficulty walking. In clinical trials AMPYRA helped improve walking speeds by as much as 25%. Having taken 4-AP, the main ingredient in AMPYRA, I can tell you that I walk better and feel stronger when I take it and that is a good thing. Keep in mind that AMPYRA is not a substitute for one of the disease modifying drugs and will not impact the course of an person’s MS. But it will improve walking ability for many who take it.
Were there side effects? Yes, there is a risk of seizures and we knew that when I started on the drug. At first I took 10 mg a day. No problem. Then 20 mg a day and then 30 mg a day. No problem. Then I took 40 mg and BAM! I had a seizure that night. I dropped back down to 20 mg. a day and haven’t had a problem since.
The recommended dosage is 10 mg. twice a day. There is no evidence of incremental benefit with increased dosage, so don’t take more or you might have a seizure! Also, do not take AMPYRA if you have kidney or renal problems.
Here is what they won’t tell you…..4-AP is a leading brand of bird poison. It causes seizures in birds and that is what keeps them away. Who figured out that it might be good for people? I love modern medicine.
Acorda Therapeutics, the company that is marketing AMPYRA, is making the product very affordable for almost everyone. Like many drug companies, they have a program for the uninsured and under-insured who qualify, to receive the medicine at no cost. For those of us with insurance, the company has agreed to limit our co-pays where allowed (Sorry Massachusetts residents) to $40.00 per month. This is much less than what I pay the compounding pharmacy each month and that’s a good thing.
To learn more go to:
http://www.ampyra.com/consumer
http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm198463.htm
Or watch a video from the National MS Society at:
http://www.youtube.com/watch?v=8E7DUwkAQv4
Walk better. Then sign up to do one of the more than 600 MS Walks taking place from coast to coast. Bring a friend or join us. You, and your friend, will be glad you did.
Join Us At National MS Society - Walk Event:
Participate. Make a difference. Live a life that matters.
Saturday, February 13, 2010
Because it is Valentine's Day
Recently, one of my oldest and dearest friends had a stroke. He survived, yet it was a shock to all of us. Then, just a few weeks later, another dear friend had a heart attack and survived. It seems as though they have both fully recovered, but WOW! What a wake up call, not just for them, but all of us who were paying attention.
After my first friend’s stroke and just before my other friend’s heart attack, my little half-sister fell and broke her leg. Following her surgery, she had complications with her breathing. You see, our little Naomi did not know how to swallow correctly and her lungs filled with fluid. Soon she was on life support, and shortly after that, it became clear that she would never recover. As a family, we all agreed that taking her off of life support was the right thing to do. Naomi died just a day later.
Naomi had severe developmental disability (It is no longer considered appropriate to use the term “retarded”.) She was 39 years old and others who had a similar condition had never lived beyond 30 years of age. Though her life was not particularly long, it was not a short life. It was certainly long enough for her to have had an impact on a number of people.
I tell you this because it is Valentine’s Day. Though Valentine’s Day is traditionally reserved for lovers, I think it is a good time to tell everyone you love that they matter and make a difference…before it is too late.
Telling people that we love them would be a great habit to have every day. But if you are like me, you may not take the time daily to communicate this message to those you love most and just assume that they know. If that is as true for you as it is for me, then I encourage you to use Valentine’s Day to get the word out.
In fact, if you are reading this, please know that you make a difference to me and I love you for that.
Participate. Make a difference. Live a life that matters.
After my first friend’s stroke and just before my other friend’s heart attack, my little half-sister fell and broke her leg. Following her surgery, she had complications with her breathing. You see, our little Naomi did not know how to swallow correctly and her lungs filled with fluid. Soon she was on life support, and shortly after that, it became clear that she would never recover. As a family, we all agreed that taking her off of life support was the right thing to do. Naomi died just a day later.
Naomi had severe developmental disability (It is no longer considered appropriate to use the term “retarded”.) She was 39 years old and others who had a similar condition had never lived beyond 30 years of age. Though her life was not particularly long, it was not a short life. It was certainly long enough for her to have had an impact on a number of people.
I tell you this because it is Valentine’s Day. Though Valentine’s Day is traditionally reserved for lovers, I think it is a good time to tell everyone you love that they matter and make a difference…before it is too late.
Telling people that we love them would be a great habit to have every day. But if you are like me, you may not take the time daily to communicate this message to those you love most and just assume that they know. If that is as true for you as it is for me, then I encourage you to use Valentine’s Day to get the word out.
In fact, if you are reading this, please know that you make a difference to me and I love you for that.
Participate. Make a difference. Live a life that matters.
Tuesday, January 26, 2010
Staying in the race.
I love to run. Now that may come as a surprise to many of you, especially since I use a walker or wheelchair today, but it’s true.
I started running about 15 years ago, late by most runners standards, and I was not a typical runner. Truthfully, I was a jogger and some runners would say that jogging is not the same as running and they are right. So for arguments sake, let’s say that I love to jog.
When I started jogging I weighed about 234 pounds, a substantial amount for anybody 5’8” tall and especially a jogger. I started out, probably like a lot of people, on a treadmill, first with walking and then jogging a few steps, then walking and then jogging again and so on. Eventually I got to the point where I could jog constantly for 30 minutes. At that point I had become a real jogger.
How much jogging did I do? A fair amount. I would get up and jog a 5K almost every morning, at least 5 days a week. Do you know what happened? I lost weight? Do you know what I discovered? If I jogged, I could eat whatever I wanted and not gain weight. What a great deal that was! I jogged, which I loved to do, and I got to eat whatever I wanted. I had found the formula for a happy life.
In time I did a number of 5K events, even a few 10K’s. But a 10K is only 6.5 miles and I needed to go further. Joggers and runners talk about being in the zone. The zone is both a mental and physical state that enables you to keep going. It transcends distance and exhaustion and you keep moving. It is difficult to explain or to expect someone to understand unless they have been in the zone, too. For you non-joggers, you are just going to have to trust me on this one.
Early one Saturday morning I set out to jog a greater distance. I did not know how far I would get, but I was going. I put my wife on alert that she may have to pick me up at some yet to be determined location and I was off. A few hours later she picked me up. I had jogged 13 miles, a half marathon. I did it and I still had a lot more in me. I was about to become a long distance jogger.
No matter how you do it, jogging, walking or running, it still takes a lot of time to go 20 miles. That distance, 20 miles, became my regular weekend run and it took me 4.5 to 5 hours to do. I would leave my house between 5:30 and 6:00 in the morning, drive to Beverly Hills, park the car and head to the ocean…..and back. A pretty good run, or jog, by almost anyone’s standards.
I kept up my jogging for many months, though in time it was less and less. Why? Mostly because of work. It got to a point where I usually worked six days a week and 10 to 14 hour days were more common than uncommon. Eventually work had replaced jogging altogether.
A few years later, I started having problems with my legs; numbness, tingling and weakness. I called the doctor and in a matter of days was diagnosed with multiple sclerosis. Since that time, the disease has progressed and my walking is very limited and requires a walker. Obviously my jogging days are over.
Today I use jogging as a metaphor. I get up every day and ‘put my sneakers on’, metaphorically speaking, that is. I still sign up, register and prepare for life’s big events and know that to be a participant, I have to go the distance to cross the finish line. We all do…..if we choose to.
About two years ago I was introduced to Mitchell, an extraordinary man who has survived incredible life events including a plane crash and motorcycle accident. Today he is confined to a wheelchair and says "Before I was paralyzed there were 10,000 things I could do. Now there are 9,000. I can either dwell on the 1,000 I've lost or focus on the 9,000 I have left." Clearly he is focused on what he can do. (www.wmitchell.com )
I can’t jog anymore. But not being able to jog doesn’t keep me out of the race. I still participate. I do what I can and focus on what I can do. In many ways, I am busier and happier today than I have ever been. I write, travel, skydive, speak for the MS Society, socialize and much more.
I am still in the race.
Participate. Make a difference. Live a life that matters.
I started running about 15 years ago, late by most runners standards, and I was not a typical runner. Truthfully, I was a jogger and some runners would say that jogging is not the same as running and they are right. So for arguments sake, let’s say that I love to jog.
When I started jogging I weighed about 234 pounds, a substantial amount for anybody 5’8” tall and especially a jogger. I started out, probably like a lot of people, on a treadmill, first with walking and then jogging a few steps, then walking and then jogging again and so on. Eventually I got to the point where I could jog constantly for 30 minutes. At that point I had become a real jogger.
How much jogging did I do? A fair amount. I would get up and jog a 5K almost every morning, at least 5 days a week. Do you know what happened? I lost weight? Do you know what I discovered? If I jogged, I could eat whatever I wanted and not gain weight. What a great deal that was! I jogged, which I loved to do, and I got to eat whatever I wanted. I had found the formula for a happy life.
In time I did a number of 5K events, even a few 10K’s. But a 10K is only 6.5 miles and I needed to go further. Joggers and runners talk about being in the zone. The zone is both a mental and physical state that enables you to keep going. It transcends distance and exhaustion and you keep moving. It is difficult to explain or to expect someone to understand unless they have been in the zone, too. For you non-joggers, you are just going to have to trust me on this one.
Early one Saturday morning I set out to jog a greater distance. I did not know how far I would get, but I was going. I put my wife on alert that she may have to pick me up at some yet to be determined location and I was off. A few hours later she picked me up. I had jogged 13 miles, a half marathon. I did it and I still had a lot more in me. I was about to become a long distance jogger.
No matter how you do it, jogging, walking or running, it still takes a lot of time to go 20 miles. That distance, 20 miles, became my regular weekend run and it took me 4.5 to 5 hours to do. I would leave my house between 5:30 and 6:00 in the morning, drive to Beverly Hills, park the car and head to the ocean…..and back. A pretty good run, or jog, by almost anyone’s standards.
I kept up my jogging for many months, though in time it was less and less. Why? Mostly because of work. It got to a point where I usually worked six days a week and 10 to 14 hour days were more common than uncommon. Eventually work had replaced jogging altogether.
A few years later, I started having problems with my legs; numbness, tingling and weakness. I called the doctor and in a matter of days was diagnosed with multiple sclerosis. Since that time, the disease has progressed and my walking is very limited and requires a walker. Obviously my jogging days are over.
Today I use jogging as a metaphor. I get up every day and ‘put my sneakers on’, metaphorically speaking, that is. I still sign up, register and prepare for life’s big events and know that to be a participant, I have to go the distance to cross the finish line. We all do…..if we choose to.
About two years ago I was introduced to Mitchell, an extraordinary man who has survived incredible life events including a plane crash and motorcycle accident. Today he is confined to a wheelchair and says "Before I was paralyzed there were 10,000 things I could do. Now there are 9,000. I can either dwell on the 1,000 I've lost or focus on the 9,000 I have left." Clearly he is focused on what he can do. (www.wmitchell.com )
I can’t jog anymore. But not being able to jog doesn’t keep me out of the race. I still participate. I do what I can and focus on what I can do. In many ways, I am busier and happier today than I have ever been. I write, travel, skydive, speak for the MS Society, socialize and much more.
I am still in the race.
Participate. Make a difference. Live a life that matters.
Friday, January 1, 2010
It starts with the decision: "It can be done."
It starts with the decision: "It can be done."
It's New Year's Day. As is our custom, we woke up, turned on the TV and began watching the Rose Parade and then I saw them. The Ohio State School for the Blind Marching Band. WOW! A blind marching band. Who thought of that? The answer is "somebody did."
To me, it was both impressive and beautiful. Their story is better. The band existed, but did not start marching until the Ohio School for the Deaf revived its football program and requested a marching band. Fantastic on all accounts. (Learn More)
The fact is that doing the impossible always starts with someone having the idea that it can be done.
This is true for any and every advancement that we as a species have ever made. Advancements in science, politics, sports, human rights, technology, the arts and so on have all resulted because someone decided it can be done.
When Roger Bannister broke the four minute mile barrier in 1954, our world was forever changed. He did it because he believed it could be done and the impossible was suddenly possible. Since that time, scores of people have run a four minute mile. Is a three minute mile possible? It won’t until someone decides it can be done. For me, I have learned to never say never.
I am relatively certain that I will never run a four minute mile (or five or six minute mile either!). But because there are people who can and do believe that things are possible, the impossible, the unthinkable, the unimaginable has become possible. Today we know that you can never prove a negative. That is, you can never prove that something will never happen. What we can do is continue to make advances, even if only at a fraction of a second at a time.
The treatments we have today for cancer, diabetes, heart disease, AIDS and MS were all non-existent just 30 years ago. Will we cure all of these diseases? We won’t unless we think it can be done.
It is a now 2010. It is a time for me to ask myself “What can I do?” I have a few ideas and if I do them, I promise to let you know about them. My hope for the new year is that you will ask yourself the same question.
Participate. Make a difference. Live a life that matters.
It's New Year's Day. As is our custom, we woke up, turned on the TV and began watching the Rose Parade and then I saw them. The Ohio State School for the Blind Marching Band. WOW! A blind marching band. Who thought of that? The answer is "somebody did."
To me, it was both impressive and beautiful. Their story is better. The band existed, but did not start marching until the Ohio School for the Deaf revived its football program and requested a marching band. Fantastic on all accounts. (Learn More)
The fact is that doing the impossible always starts with someone having the idea that it can be done.
This is true for any and every advancement that we as a species have ever made. Advancements in science, politics, sports, human rights, technology, the arts and so on have all resulted because someone decided it can be done.
When Roger Bannister broke the four minute mile barrier in 1954, our world was forever changed. He did it because he believed it could be done and the impossible was suddenly possible. Since that time, scores of people have run a four minute mile. Is a three minute mile possible? It won’t until someone decides it can be done. For me, I have learned to never say never.
I am relatively certain that I will never run a four minute mile (or five or six minute mile either!). But because there are people who can and do believe that things are possible, the impossible, the unthinkable, the unimaginable has become possible. Today we know that you can never prove a negative. That is, you can never prove that something will never happen. What we can do is continue to make advances, even if only at a fraction of a second at a time.
The treatments we have today for cancer, diabetes, heart disease, AIDS and MS were all non-existent just 30 years ago. Will we cure all of these diseases? We won’t unless we think it can be done.
It is a now 2010. It is a time for me to ask myself “What can I do?” I have a few ideas and if I do them, I promise to let you know about them. My hope for the new year is that you will ask yourself the same question.
Participate. Make a difference. Live a life that matters.
Tuesday, December 22, 2009
My Bucket List Just Got Shorter.
I have wanted to do it for years. I was going to do it for my 50th birthday and couldn’t because I weighed too much, so I waited. I lost weight (30 pounds) and for my 52nd birthday, I did it. I jumped out of an airplane and went SKYDIVING.
Like most first-time jumpers, I did a tandem jump. This means that I was tied to, strapped to and hooked to an experienced jumper. It also meant that I did not have to worry about opening my parachute. It was done for me.
There was nothing for me to worry about. When I was at the door of the plane readying to jump, there was no time to say “Wait, wait, wait!”, or even think about it. Before I knew it, my ‘travel partner’ and I were out of the plane and free-falling.
Free-falling. Now there is a term. Let me explain what freefalling is like.
Imagine a roller-coaster ride. The ride climbs to the top and then WHOOSH! You are dropping at about 75 to 85 miles per hour and the drop, rarely more than 100 feet, lasts for two to three seconds. Although you are safely strapped in and seated in a metal car, your hands are in the air as you scream with delight; perhaps the longest two or three seconds of your life.
Free-falling is different. Your airplane climbs to 12,500 feet and then you jump. A small chute opens quickly so that you are face down and slowed to 120 miles per hour. You ‘fall’ at that speed for just over a mile, about six thousand feet, and for about 30 seconds. (Want to know how long thirty seconds is? Count it out saying “One thousand and one, one thousand and two”, etc) Also, there is no metal car. Just your own personal cheerleader, riding on your back and encouraging you the whole way down.
Sensory Overload. My arms instinctively spread wide like a bird. The goggles protect your eyes, but my cheeks were flapping in the wind, while my heart raced and my mind went numb! Too much to absorb. Too much to take in all at once.
I looked down and was amazed at how high up in the air I was. As far as I was concerned, I could see for hundreds of miles. The thrill, the excitement and the adrenaline were like nothing I had ever experienced before. I quickly understood why so many make this there sport of choice.
Finally and suddenly the parachute opens. The next seven or eight minutes are spent coasting to earth…..albeit at a much faster speed than I had expected. Most of that time was spent regaining my composure, high-fiving my travel companion and trying to absorb everything I had just gone through.
Jumping with me were my son, Adam and my good friend Randy. It was Adam’s first time too. But it was Randy’s 359th jump and he goes solo. While the rest of us were outfitted with helmets and jumpsuits, Randy wore only a t-shirt and shorts. He jumped first and did about eleven summersaults before opening his parachute. What a guy. What kahunas!
There were other experienced jumpers on the plane, jumping in groups of three to five and doing aerial formations on the way down. What a sight. Poetry in motion…..very fast motion.
Of course, I had something that no one else on the plane had: a disability. I was prepared and the crew was ready for me. It turns out that this particular skydiving location accommodates people with disabilities regularly and they knew just what to do.
They wheeled me out to the plane and instantly lifted me onboard. Their skill, knowledge and confidence made me comfortable and secure. My only question was how would I land? They had an answer for that too.
My legs were strapped together around my knees and ankles. As we descended towards our landing, the ground crew was waiting for me. They were there to make sure that my legs stayed up, in front of me and did not fold underneath me. Smooth and gentle, just as I like it….and expected.
The whole experience was very different than I expected. Years ago I took a flight lesson in a small Cessna four passenger plane. The sense of flying I felt was like nothing I had ever felt before. It was as though I knew just how a bird felt as they soared across the sky.
Since then, I have wanted to try other flying activities like gliding and hang gliding. While I never did either of those, I have gone para-sailing and loved it. It too gave that sense of soaring through the air.
I did not have that feeling at all while skydiving. Even after the parachute opened, we were still moving too quickly to feel as though we were soaring through the air. I did not feel like a bird, but I sure did feel a whole lot else.
You may know or have already guessed that skydiving is not cheap. In fact it is expensive, about $200 per person for a tandem jump. But you can do it for FREE!
There is a new no-profit group called Skydive4free.com and they have affiliated with skydive locations all over the country. All you have to do is raise $500 for your favorite charity and you are good to go. Visit their web site at www.Skydive4free.com and get all the details.
Do good in the world. Raise some money and do the jump. Then cross another item off of your bucket list.
Participate. Make a difference. Live a life that matters.
Like most first-time jumpers, I did a tandem jump. This means that I was tied to, strapped to and hooked to an experienced jumper. It also meant that I did not have to worry about opening my parachute. It was done for me.
There was nothing for me to worry about. When I was at the door of the plane readying to jump, there was no time to say “Wait, wait, wait!”, or even think about it. Before I knew it, my ‘travel partner’ and I were out of the plane and free-falling.
Free-falling. Now there is a term. Let me explain what freefalling is like.
Imagine a roller-coaster ride. The ride climbs to the top and then WHOOSH! You are dropping at about 75 to 85 miles per hour and the drop, rarely more than 100 feet, lasts for two to three seconds. Although you are safely strapped in and seated in a metal car, your hands are in the air as you scream with delight; perhaps the longest two or three seconds of your life.
Free-falling is different. Your airplane climbs to 12,500 feet and then you jump. A small chute opens quickly so that you are face down and slowed to 120 miles per hour. You ‘fall’ at that speed for just over a mile, about six thousand feet, and for about 30 seconds. (Want to know how long thirty seconds is? Count it out saying “One thousand and one, one thousand and two”, etc) Also, there is no metal car. Just your own personal cheerleader, riding on your back and encouraging you the whole way down.
Sensory Overload. My arms instinctively spread wide like a bird. The goggles protect your eyes, but my cheeks were flapping in the wind, while my heart raced and my mind went numb! Too much to absorb. Too much to take in all at once.
I looked down and was amazed at how high up in the air I was. As far as I was concerned, I could see for hundreds of miles. The thrill, the excitement and the adrenaline were like nothing I had ever experienced before. I quickly understood why so many make this there sport of choice.
Finally and suddenly the parachute opens. The next seven or eight minutes are spent coasting to earth…..albeit at a much faster speed than I had expected. Most of that time was spent regaining my composure, high-fiving my travel companion and trying to absorb everything I had just gone through.
Jumping with me were my son, Adam and my good friend Randy. It was Adam’s first time too. But it was Randy’s 359th jump and he goes solo. While the rest of us were outfitted with helmets and jumpsuits, Randy wore only a t-shirt and shorts. He jumped first and did about eleven summersaults before opening his parachute. What a guy. What kahunas!
There were other experienced jumpers on the plane, jumping in groups of three to five and doing aerial formations on the way down. What a sight. Poetry in motion…..very fast motion.
Of course, I had something that no one else on the plane had: a disability. I was prepared and the crew was ready for me. It turns out that this particular skydiving location accommodates people with disabilities regularly and they knew just what to do.
They wheeled me out to the plane and instantly lifted me onboard. Their skill, knowledge and confidence made me comfortable and secure. My only question was how would I land? They had an answer for that too.
My legs were strapped together around my knees and ankles. As we descended towards our landing, the ground crew was waiting for me. They were there to make sure that my legs stayed up, in front of me and did not fold underneath me. Smooth and gentle, just as I like it….and expected.
The whole experience was very different than I expected. Years ago I took a flight lesson in a small Cessna four passenger plane. The sense of flying I felt was like nothing I had ever felt before. It was as though I knew just how a bird felt as they soared across the sky.
Since then, I have wanted to try other flying activities like gliding and hang gliding. While I never did either of those, I have gone para-sailing and loved it. It too gave that sense of soaring through the air.
I did not have that feeling at all while skydiving. Even after the parachute opened, we were still moving too quickly to feel as though we were soaring through the air. I did not feel like a bird, but I sure did feel a whole lot else.
You may know or have already guessed that skydiving is not cheap. In fact it is expensive, about $200 per person for a tandem jump. But you can do it for FREE!
There is a new no-profit group called Skydive4free.com and they have affiliated with skydive locations all over the country. All you have to do is raise $500 for your favorite charity and you are good to go. Visit their web site at www.Skydive4free.com and get all the details.
Do good in the world. Raise some money and do the jump. Then cross another item off of your bucket list.
Participate. Make a difference. Live a life that matters.
Friday, December 11, 2009
Topsy-Turvy
Topsy-Turvey. Sometimes called higgledy-piggledy. But whatever you call it, that is how we roll.
On-line dictionaries define it as:
1. with the top where the bottom should be; upside down.
2. in or into a reversed condition or order.
3. in or into a state of confusion or disorder.
Yeah. That’s us. That is my wife and I. I don’t think that we would have or want to do it any other way. Our lifestyle would drive other people nuts, but it absolutely how we live our lives.
We are constantly going, doing, hosting, inviting, including, having, making or participating in something. When we are home, our home is always open and the parade of characters constantly coming through is endless. We are almost always spontaneous and are known as the “Late Night Gerbers.” Yup. That’s how we roll.
A good example was this year’s Thanksgiving dinner. OY!
On-line dictionaries define it as:
1. with the top where the bottom should be; upside down.
2. in or into a reversed condition or order.
3. in or into a state of confusion or disorder.
Yeah. That’s us. That is my wife and I. I don’t think that we would have or want to do it any other way. Our lifestyle would drive other people nuts, but it absolutely how we live our lives.
We are constantly going, doing, hosting, inviting, including, having, making or participating in something. When we are home, our home is always open and the parade of characters constantly coming through is endless. We are almost always spontaneous and are known as the “Late Night Gerbers.” Yup. That’s how we roll.
A good example was this year’s Thanksgiving dinner. OY!
We decided to do a little work on our home before the holidays and instead opened Pandora’s Box. A little work turned into a lot of work. The day before the holiday we still had painters, electricians, plumbers and artisans all working in the kitchen! We actually had to set up a make shift kitchen on our back patio to prepare the holiday feast. Except for the oven, the kitchen was off limits to us. In fact, the day of the dinner we still had some workers their up until 30 minutes before guests arrived. Madness, mayhem and chaos right down to the wire.
In the end, we had 23 guests for dinner, the house looked beautiful, the food was great and a good time was had by all.
The only question is why? Why would anyone want to live their lives that way?
The best answer I can give is that we both choose to be involved in as much and as many activities as we can. We also love the people we love and want to give them as much as we can. What we can give them is our home, a safe place, a refuge and a respite…..and sometimes a warm meal. We can also lend an ear, share a joke or tell stories about our latest adventures.
Our lives are full, adventurous and exciting. We are rich beyond our wildest dreams in every way that really matters….except for money that is. Most of all, we get to be exactly who we want to be in this world and that is a great privilege for which we are extremely grateful.
Does it come at a price? Of course it does. It means that our lives are chaotic, upside-down, disorganized……Topsy-Turvy. We wouldn’t have it any other way.
Participate. Make a difference. Live a life that matters.
The only question is why? Why would anyone want to live their lives that way?
The best answer I can give is that we both choose to be involved in as much and as many activities as we can. We also love the people we love and want to give them as much as we can. What we can give them is our home, a safe place, a refuge and a respite…..and sometimes a warm meal. We can also lend an ear, share a joke or tell stories about our latest adventures.
Our lives are full, adventurous and exciting. We are rich beyond our wildest dreams in every way that really matters….except for money that is. Most of all, we get to be exactly who we want to be in this world and that is a great privilege for which we are extremely grateful.
Does it come at a price? Of course it does. It means that our lives are chaotic, upside-down, disorganized……Topsy-Turvy. We wouldn’t have it any other way.
Participate. Make a difference. Live a life that matters.
Wednesday, December 2, 2009
Exclusivity
People with a disability are excluded for one of two reasons. The first reason being that they are actually excluded because of their disability. The other being that they exclude themselves because of their disability. Both may be valid. Both may be wrong.
Two years ago we travelled to Paris, France, truly one of the world’s greatest cities. “C’est magnifique!” I loved it and yet, found it to be a very challenging place to travel to. In a very short time we noticed an absence of people in wheelchairs and soon discovered why. Nothing is accessible. One evening we spent over two hours looking for a bathroom. While we found the people very accommodating, most facilities were not.....which explains why we saw few people in wheelchairs. They are excluded because of physical and structural limitations. (In all fairness to France, the government is quite aware of this problem and is working hard to remedy it.)
People, with or without disabilities, are often excluded because of their own physical limitations. You can’t sit in an exit row of an airplane if you can’t walk. You must be a certain height to ride a rollercoaster. You must weigh under a certain weight to go skydiving. All limitations driven by safety and liability concerns. Very valid. Very reasonable.
Less reasonable or valid are those instances where a person is excluded from participation because it may inconvenience someone else. How much inconvenience should one be expected to endure? Having doorways and aisles that are wide enough for wheelchairs. Putting bars on the wall in bathrooms. Modify a workspace for an employee. That is a personal choice or a subject for our lawmakers to debate. Generally speaking, here in the states there are many laws in place to insure the inclusion and protection of those of us with disabilities.
My bigger concern has to do with the countless instances where a person with a disability has excluded themselves from participating simply because of their disability. We know this happens when we see an absence of, or less than representative participation in activities by those with disabilities. This is true in politics, medicine and business. It is also seen in sporting activities, talent shows and at job fairs. The list goes on and on. Certainly there are exceptions, but it is definitely not the norm…..and it needs to be that.
Much of our world has been made greatly accessible to those of us who have disabilities and yet, we often do not participate. Why? Inconvenience? Embarrassment? Whatever the reason, it may not be good enough.
Not participating means not living life to the fullest. “To the fullest” is different for each one of us. But at the end of our days there is only one question. Did we? Did we visit family and friends? Participate in events and activities for our loved ones and community? Did we do all that we could have done?
Did we go to school or work and make a difference in the world? Did we go skiing, fishing or climb Mount Everest? Did we play sports, travel or go skydiving? Did we go to every concert, presentation or event that we could have and if not, why? The world is filled with people with great physical limitations who do amazing things. The world is also filled with great opportunities for those of us with disabilities.
Those of us with disabilities need to take advantage of what has been made available to us. How can we ask for more or better treatment when we don’t take advantage of what is already there? My personal goal is to increase the visibility of disability. When we do that, or when we have done enough of that, then we can expect our inclusion to be the norm…..even in the most exclusive of settings.
Participate. Make a difference. Live a life that matters.
Two years ago we travelled to Paris, France, truly one of the world’s greatest cities. “C’est magnifique!” I loved it and yet, found it to be a very challenging place to travel to. In a very short time we noticed an absence of people in wheelchairs and soon discovered why. Nothing is accessible. One evening we spent over two hours looking for a bathroom. While we found the people very accommodating, most facilities were not.....which explains why we saw few people in wheelchairs. They are excluded because of physical and structural limitations. (In all fairness to France, the government is quite aware of this problem and is working hard to remedy it.)
People, with or without disabilities, are often excluded because of their own physical limitations. You can’t sit in an exit row of an airplane if you can’t walk. You must be a certain height to ride a rollercoaster. You must weigh under a certain weight to go skydiving. All limitations driven by safety and liability concerns. Very valid. Very reasonable.
Less reasonable or valid are those instances where a person is excluded from participation because it may inconvenience someone else. How much inconvenience should one be expected to endure? Having doorways and aisles that are wide enough for wheelchairs. Putting bars on the wall in bathrooms. Modify a workspace for an employee. That is a personal choice or a subject for our lawmakers to debate. Generally speaking, here in the states there are many laws in place to insure the inclusion and protection of those of us with disabilities.
My bigger concern has to do with the countless instances where a person with a disability has excluded themselves from participating simply because of their disability. We know this happens when we see an absence of, or less than representative participation in activities by those with disabilities. This is true in politics, medicine and business. It is also seen in sporting activities, talent shows and at job fairs. The list goes on and on. Certainly there are exceptions, but it is definitely not the norm…..and it needs to be that.
Much of our world has been made greatly accessible to those of us who have disabilities and yet, we often do not participate. Why? Inconvenience? Embarrassment? Whatever the reason, it may not be good enough.
Not participating means not living life to the fullest. “To the fullest” is different for each one of us. But at the end of our days there is only one question. Did we? Did we visit family and friends? Participate in events and activities for our loved ones and community? Did we do all that we could have done?
Did we go to school or work and make a difference in the world? Did we go skiing, fishing or climb Mount Everest? Did we play sports, travel or go skydiving? Did we go to every concert, presentation or event that we could have and if not, why? The world is filled with people with great physical limitations who do amazing things. The world is also filled with great opportunities for those of us with disabilities.
Those of us with disabilities need to take advantage of what has been made available to us. How can we ask for more or better treatment when we don’t take advantage of what is already there? My personal goal is to increase the visibility of disability. When we do that, or when we have done enough of that, then we can expect our inclusion to be the norm…..even in the most exclusive of settings.
Participate. Make a difference. Live a life that matters.
Thursday, November 26, 2009
Today I am thankful
Happy Thanksgiving. I have a very long list of all that I am thankful for. This is just a part of it.
At the top of the list is my wife. She is everything to me. She gives me a life and love. She is my companion on this journey and being with her makes everything better.
Then there is my family. Our two great kids who are both good, smart, kind and a never ending source of joy. Then my siblings, which includes my brother with his huge heart and sister, who continues to become more extraordinary every day. Then my parents. My father, who is always teaching by his example and my deceased mother, the most amazing woman ever, who is still with me all of the time. My family also includes my mother and father-in-law whose support of and for us is endless. I can’t imagine our lives without them. That is my immediate family and I am thankful for each one of them.
Then there are my friends and what a wild and crazy bunch they are. Their commitment to us is constant, as is their companionship. There is not enough time to spend with all of them. But there is more fun, entertainment, support, encouragement and love than I ever could have hoped for.
Then there are my abilities which I do not take for granted.
I used to jog everyday. Now I can walk just a little and am very grateful for that ability and all of my abilities which are many. I can see, hear and listen. I can feel and care. I can think and reason. I can speak and communicate. I can make choices about my life everyday, wake up happy and grateful, make each day good for me and others, make a difference to someone or something or not.
These are some of the things I can do everyday and for all of them, I am grateful…..and thankful.
Our world is filled with millions of people who are struggling, starving, at war, abused, lost their jobs, homes, faith or hope. I do feel for all of them and yet, am thankful that I am not among them.
Today is Thanksgiving and today there is much that I am thankful for. I hope that you are feeling very thankful today too.
Participate. Make a difference. Live a life that matters.
At the top of the list is my wife. She is everything to me. She gives me a life and love. She is my companion on this journey and being with her makes everything better.
Then there is my family. Our two great kids who are both good, smart, kind and a never ending source of joy. Then my siblings, which includes my brother with his huge heart and sister, who continues to become more extraordinary every day. Then my parents. My father, who is always teaching by his example and my deceased mother, the most amazing woman ever, who is still with me all of the time. My family also includes my mother and father-in-law whose support of and for us is endless. I can’t imagine our lives without them. That is my immediate family and I am thankful for each one of them.
Then there are my friends and what a wild and crazy bunch they are. Their commitment to us is constant, as is their companionship. There is not enough time to spend with all of them. But there is more fun, entertainment, support, encouragement and love than I ever could have hoped for.
Then there are my abilities which I do not take for granted.
I used to jog everyday. Now I can walk just a little and am very grateful for that ability and all of my abilities which are many. I can see, hear and listen. I can feel and care. I can think and reason. I can speak and communicate. I can make choices about my life everyday, wake up happy and grateful, make each day good for me and others, make a difference to someone or something or not.
These are some of the things I can do everyday and for all of them, I am grateful…..and thankful.
Our world is filled with millions of people who are struggling, starving, at war, abused, lost their jobs, homes, faith or hope. I do feel for all of them and yet, am thankful that I am not among them.
Today is Thanksgiving and today there is much that I am thankful for. I hope that you are feeling very thankful today too.
Participate. Make a difference. Live a life that matters.
Subscribe to:
Posts (Atom)