I wrote a blog about 18 months ago called "What if it was your child?' It is about my niece, Chelsea who has an extremely rare and always fatal condition called Lafora Disease.
It is so rare that there are only a couple hundred known cases worldwide. There is also no treatment and no cure. Here is what we know about Lafora today:
Kids are typically diagnosed in their early teens
The mental and physical deterioration occur rapidly
No one with Lafora has lived to be 30 years old
Life expectancy is usually about ten years from the date of diagnosis. Chelsea was diagnosed almost six years ago.
What does all this have to do with the internet? Plenty.
Increased awareness means increased funding for research and treatment. Chelsea, or rather Chelsea's Hope, a non-profit organization founded by her incredible parents is now in the final round of a contest sponsored by Toyota.
If we win, a car will be decorated and dedicated to Chelsea's Hope. To win we need votes which you can do every day until May 1st. We need your vote. We need your friends to vote. We need you to go onto Facebook or MySpace or Linked In or whatever social network you belong to and help us generate as many votes as you can. That is the power of the internet to do good in the world. But if we do nothing, nothing will happen.
Voting is simple. Just CLICK HERE.
To learn more about Chelsea's Hope, CLICK HERE.
To make a difference I the world, TELL A FRIEND.
That is the power of he internet to do good in the world. I hope you will help us to do that.
Participate. Make a difference. Live a life that matters.
